This is a compilation of resources shared at Sibshop Facilitator Trainings and other events hosted by the Sibling Support Project. Thanks to all who have contributed!
Articles, Books and Films
The Sibling Survival Guide: Indispensable Information for Brothers and Sisters of Adults with Disabilities
Thicker Than Water: Essays by Adult Siblings of People with Disabilities
How to Talk So Kids Will Listen and Listen So Kids Will Talk
Demystifying Disability: What to Know, What to Say, and How to be an Ally by Emily Ladau
New York Times Parenting article on siblings: https://nyti.ms/2SXvYiR
Spectrum News article on siblings: https://bit.ly/39CI6wL
Vanier Family Institute article: Strength in Diversity: Positive Impacts of Children with Disabilities https://vanierinstitute.ca/strength-in-diversity-positive-impacts-of-children-with-disabilities/
Poem: Welcome to Holland – often cited by parents of children with disabilities https://www.dsasc.ca/uploads/8/5/3/9/8539131/welcome_to_holland.pdf
Wonder – a book and movie that includes a sibling story
Who Will Love Me by Kaleen Marshall – a book for caregivers. https://www.kaleenmarshall.com/who-will-love-me.
Riding the Bus with My Sister by Rachel Simon
My Dog Is As Smelly As Dirty Socks: And Other Funny Family Portraits – activity book to use with children https://www.amazon.com/Dog-Smelly-Dirty-Socks-Portraits/dp/0307930890
The Good Egg by Jory John https://www.amazon.com/gp/product/0062866001/ref=ox_sc_act_title_2?smid=ATVPDKIKX0DER&psc=1. Read aloud on YouTube: https://www.youtube.com/watch?v=eXwQQqHwajs.
For more children’s book recommendations visit https://siblingsupport.org/publications/, “Other Books for Young Readers” and “recommended reading list for young siblings.”
Future Planning Resources
The Arc’s Center for Future Planning, including free online tools for siblings and families to create a future plan: https://futureplanning.thearc.org/
Supported Decision Making Resources from the Sibling Leadership Network: https://siblingleadership.org/2017/08/23/helpful-resource-supported-decision-making/
Charting the Life Course free online tools for people with disabilities and families in multiple languages: https://www.lifecoursetools.com/
In Canada: http://www.partnersforplanning.ca/ (there is a cost for planning services)
Online Groups for Siblings
SibNet for adult siblings https://www.facebook.com/groups/SibNet
Sib20 for sibs in their 20s https://www.facebook.com/groups/118970768514797
SibTeen for adolescent siblings https://www.facebook.com/groups/SibTeen
Hermanes Capaces for Spanish-speaking sibs around the world https://www.facebook.com/groups/hermanescapaces
Siblings Of Schizophrenia And Other Serious Mental illness for siblings of individuals with mental health concerns https://www.facebook.com/groups/174361526486445
Organizations
Sibling Support Project https://siblingsupport.org/
National Sibling Leadership Network (links to affiliated state chapters) https://siblingleadership.org/
Siblings with a Mission http://www.siblingswithamission.org/
Sibling Transformation Project https://www.siblingtransformation.org/
Special Needs Siblings https://specialneedssiblings.com/
SibStrong https://www.sibstrong.org/
National Black Disability Coalition https://www.facebook.com/black.disability
WisconSibs https://wisconsibs.org/
Sandy Feet Initiative (CA) https://www.sandyfeetoc.org/
Siblings Canada https://canadiancaregiving.org/siblingscanada/
Sibs (UK) https://www.sibs.org.uk/
Siblings Australia http://siblingsaustralia.org.au/
Actualizados (Argentina) https://actualizados.com.ar/
Siblings of Special Needs Nigeria https://www.instagram.com/sosneedsng/
SibTane (Japan) https://sibtane.com/
Alex’s Lemonade Stand Foundation (ALSF) SuperSibs, supporting siblings of children with cancer https://www.alexslemonade.org/childhood-cancer/for-families/supersibs
Parent to Parent USA, offering peer support for parents of children with support needs that strengthens the entire family https://www.p2pusa.org/.
Mesothelioma Hope, https://www.mesotheliomahope.com/resources/children/
Podcasts
“Constant Chaos” pod focuses on siblings: https://siblingsupport.org/constant-chaos-podcast-explores-supporting-siblings/
Sibling Support on the Better Behavior Show with Dr. Nicole Beurkens: https://siblingsupport.org/sibling-support-featured-on-the-better-behavior-show-with-dr-nicole-beurkens/.
“Once Upon a Gene” siblings edition: https://apple.co/2TxHDWC
“Live from Sibshops!” podcast from “A Piece of Hope” series produced by Appleseeds Behavioral Center in Georgia http://bit.ly/2oDvW3q
“Kid Logic” from This American Life https://www.thisamericanlife.org/605/kid-logic
Racial Equity Resources
Sibling Support Project Message on Tolerance
Anti-Racist resources for Sibshop Facilitators
BIPOC Sibling Roundtable Series: BIPOC Siblings Share their Stories
Reimagined (formerly Anti-Racism Daily)
https://equityinthecenter.org/aww/
Working Inside Out: Tools for Change by Margo Adair
The Future of Healing: Shifting From Trauma Informed Care to Healing Centered Engagement by Shawn Ginwright, Ph.D.
https://www.racialequitytools.org/glossary
Research
The Sibling Leadership Network has compiled a database of major sibling studies since 1962. A tremendous resource!
Sibling Relationships Around the World: Experiences of Siblings of Special Olympics Athletes – Findings from a study on siblings in Africa, Asia and Latin America 1-page Summary: https://bit.ly/3fcyGZR
Sibling engagement resources from Special Olympics: https://resources.specialolympics.org/community-building/families/sibling-engagement
Epilepsy & Behavior journal article on the impact that DEE’s have on siblings, titled “Psychosocial impact on siblings of patients with developmental and epileptic encephalopathies.” https://bit.ly/3sKUXI4
Resources for Grieving Siblings
Safe Crossings Foundation (to help children – see “get help” for activities to use with kids): http://safecrossingsfoundation.org/
The Dougy Center – Supporting Grieving Siblings: https://www.dougy.org/grief-resources/tip-sheets/supporting_grieving_siblings/1631
Armfuls of Time: The Psychological Experience of the Child With a Life-Threatening Illness by Barbara M. Sourkes (For parents/professionals)
Annie’s Hope Center for Grieving Kids http://annieshope.org/
The Hospice Foundation – grief resources https://hospicefoundation.org/Grief-(1)
What’s Your Grief? Website resources https://whatsyourgrief.com/
Loss of a Special Needs Sibling (for adult sibs): https://www.facebook.com/groups/554229302095590
Compassionate Friends https://www.compassionatefriends.org/ FB group: https://www.facebook.com/TCFUSA
Crisis Text Line serves anyone, in any type of crisis, providing access to free, 24/7. https://www.crisistextline.org/text-us/ Text HOME to 741741 to reach a Crisis Counselor
Sibling Leadership Network grief info: https://siblingleadership.org/2020/07/16/new-grief-loss-resources/ and Sib Grief Webinar by Shruti Tekwani from September 2019
Trauma-Informed Practices
Books
Gabor Maté:
- When The Body Says No: The Cost of Hidden Stress
- In The Realm of Hungry Ghosts: Close Encounters With Addiction
- Scattered Minds: The Origins and Healing of Attention Deficit Disorder(U.S. title: Scattered: How ADD Originates and What You Can Do About It)
Peter Levine:
- In an Unspoken Voice: How the Body Releases Trauma and Restores Goodness
- Healing Trauma: A Pioneering Program for Restoring the Wisdom of the Body
- Waking the Tiger: Healing Trauma
Bruce D. Perry:
- Brief: Reflections on Childhood, Trauma and Society
- Born for Love: Why Empathy Is Essential—and Endangered
- What Happened to You? (with Oprah Winfrey)
Bessel van der Kolk: The Body Keeps the Score
Stephen Porges: The Polyvagal Theory (for professionals)
Mark Wolynn: It Didn’t Start With You
Thomas Hübl: Healing Collective Trauma
Julie Brown Yau: The Body Awareness Workbook for Trauma
John Sarno: The Mindbody Prescription: Healing The Body, Healing the Pain
Jeffrey Rediger: Cured: Strengthen Your Immune System and Heal Your Life
Anita Morjani: Dying to Be Me
Mark Epstein: The Trauma of Everyday Life
Daniel Siegel: The Developing Mind
Diane Poole Heller: The Power of Attachment
Laurence Heller and Aline Lapierre: Healing Developmental Trauma
Nadine Burke Harris: The Deepest Well: Healing the Long-Term Effects of Childhood Adversity
Resmaa Menakem: My Grandmother’s Hands: Racialized Trauma and the Pathway to Mending Our Hearts and Bodies
Videos
childhood trauma | PBS NewsHour
Other
SAMHSA’s Approach to Trauma-Informed Practices https://ncsacw.samhsa.gov/userfiles/files/SAMHSA_Trauma.pdf
https://downloads.aap.org/AAP/PDF/ttb_aces_consequences.pdf
Videos
Meet the Sibling Support Project https://youtu.be/_mYxPORJkN4
Meet Anya: https://youtu.be/qyz5Ds1m0q4
Yale New Haven Hospital In-Person Sibshop and Sibshops featured on ABC-TV’s 20/20: https://www.youtube.com/watch?v=gLi5AWpYASQ
Alicia Meneses Maples TedX San Antonio talk: Recognizing Glass Children https://www.youtube.com/watch?v=MSwqo-g2Tbk
Other Resources
The Sibling Support Bracelet. A symbol of sibling strength, designed by a sib to unite our community and donate 50% of proceeds to The Sibling Support Project.
Conversation Starter Cards (free, available in English and Spanish): https://health.mo.gov/living/families/connectwithme/cards.php
Sibling Resources for families and providers (variety, created by the NY State DD Council, the Sibling Leadership Network, and sibsNY): https://siblingresources.org/
Alateen for adolescents who have been affected by someone else’s drinking: https://al-anon.org/newcomers/teen-corner-alateen/
ABA Resources:
ABA Debate Series from the Arc of King County, Seattle WA https://arcofkingcounty.org/resource-guide/webinar-videos/unpacking-the-aba-debate-series.html
The On Time Autism Intervention Podcast, University of Washington:
- Podcast: https://depts.washington.edu/uwautism/research-projects/on-time-autism-intervention/otai-podcast/#:~:text=The%20On%20Time%20Autism%20Intervention,and%20resources%20for%20young%20children
- Questions to ask ABA Providers: https://depts.washington.edu/uwautism/wp-content/uploads/2022/05/OTAI-Questions-for-ABA-Providers.pdf